Monday, September 21, 2015

My reaction towards the idea of Guardianship

The idea of guardianship for a person with a disability is a great policy for a caregiver for an individual who are not  able to make proper discussions for themselves when they became an adult from 18-21 years old, this is an legal process and will have to go to family court to make an official steps in this matter. A parent will always believe they are their child's parent  and will be their guardian forever which is not the case unfortunatly. It makes a parent  feel like if a piece of their heart just broke away.. and they will no longer have no say for a child they care for and about esspecially when they have a dis-ability.  When I attend doctors appointments with my Home Health Aid, the doctors and nurses look forward to seeing my mother in appearance which makes me going to these appointments so discouraging, my mom is only considered my advocate to some point but all  discussion are made by me. My mom has done so much for me, now she is teaching me my independence and enjoying the breaks that she has now that I have all my support services that I didn't have years ago to take me to appointments and more. I know enough about my disability to relate to medical professions and even educate others, I know the right from wrong, I ask questions and if something don't sound right I say " Hold on" let me ask my mom for advice  I have a feeling that because I am diagnosed mild mentally delayed that would be the reason they look forward to seeing my mom or because I look young they don't think I am 20 years old, issues like this can possibly  make me required  for full guardianship. Because of this my rights and voice will be taken away I will give up my rights of choose  and since I am able I will be the one to sign off on this process. I don't want this to happen but that document is following me all over I want it remove but I don't know how this can change for me I am afraid that document will take my bright future away but my mom believe I am not in need of guardianship but I will now question whats on paper and how does it define me..
This has been on my mind for a while because I knew what idea would be

Tuesday, August 4, 2015

Disability Pride Parade in NYC 2015

The disability pride parade was an awesome for the first time ever in NYC
I was so excited about the event before the day arrived because I always dreamed of a day to come in which the disability community can come together and the abled body community can have some awareness about people with disabilities
It is hard to believe we have come a long way within the passing of the ADA but we sure do have a long way to go in equality for people with disabilities
What I have done in honor of the ADA celebration and I know Chelsy would be so proud of the hard work I am doing towards school and advocacy.
I saw the legacy tour   bus in Brooklyn and Queens along with both borough presidents,
It was definitely my honor to speak at ICS women's health conference and I did so much more and things are continuing to happen

Friday, July 10, 2015

Plans in Honor of Chelsy

Chelsy was a hardworking, smart, lovely, passionate young lady but she always wanted to make a difference in the lives of people with disabilities. She was the founder of Awareness Key at her college. We want to keep her mission going so I came up with the idea that we should have a scholarship or sponsorship in her honor. 
I will be happy to keep you posted on this mission 
Thanks 

Light up the Empire State Building for all causes

Support all causes 
I notice that the Empire State building lights up for Autism Awareness, down Syndrome awareness and much more but it never lights up for the Cerebral Palsy Awareness month green is our color. We have a high population that keeps increasing of indivduals with Cerebral Palsy and I noticed that we are not recognized the way we should.  I know that my friend Chelsy will be so proud of me that I am making this part of my project on how we can get the Empire State building to light up the building Green when its Cerebral Palsy Awareness Month or day.
I will keep you update on this project

Introduction Of Chelsy Blake

My dear Friend Chelsy Blake was a friend I was honored to know and meet, the way we did was different, simply through a story being published in the Able Newspaper. She never had a friend like me being that I am just like her. We had a different best friend bound she was mostly like a sister to me. We had the same mind set and wanted to see the same ideas for making a difference for people with disabilities and was willing to journey me in my advocacy journey. She was willing to make my dreams come true and create many projects as we had a lot plan.. Weeks before we was planning to go on a advocacy mission to Albany she passed away unexpectedly.. Moving forward I have a lot planned in her honor