Tuesday, September 22, 2015

The reason I created this blog

When I created  this blog it was in honor of my dear friend and sister Chelsy Blake who left me, her friends, her family and all who loved her dearly unexpectedly in September of 2014 to gain her wings in heaven, it was the saddest day for all of us but she will always be remembered for her love all who she loved, her smile,her happiness and passion to make a difference for those who are differently-able like herself, we had so much things planned to accomplish before she left my side. She even e-mailed me he business plan to work on it for her before her passing so I found it again a few days ago after looking through my email and I have deiced to find time an edit it and hope to be able to but some action to it I do plan on creating a business benefiting people with disabilities in the future  but what I do want to share is I am working on the draft of my first book about my life and Chesly although you are in heaven you will be apart of it. I love you girl I will always continue working for people with the vision you had for all of us.
Its us against the world I will never forget these words you spoken dailly

Monday, September 21, 2015

My reaction towards the idea of Guardianship

The idea of guardianship for a person with a disability is a great policy for a caregiver for an individual who are not  able to make proper discussions for themselves when they became an adult from 18-21 years old, this is an legal process and will have to go to family court to make an official steps in this matter. A parent will always believe they are their child's parent  and will be their guardian forever which is not the case unfortunatly. It makes a parent  feel like if a piece of their heart just broke away.. and they will no longer have no say for a child they care for and about esspecially when they have a dis-ability.  When I attend doctors appointments with my Home Health Aid, the doctors and nurses look forward to seeing my mother in appearance which makes me going to these appointments so discouraging, my mom is only considered my advocate to some point but all  discussion are made by me. My mom has done so much for me, now she is teaching me my independence and enjoying the breaks that she has now that I have all my support services that I didn't have years ago to take me to appointments and more. I know enough about my disability to relate to medical professions and even educate others, I know the right from wrong, I ask questions and if something don't sound right I say " Hold on" let me ask my mom for advice  I have a feeling that because I am diagnosed mild mentally delayed that would be the reason they look forward to seeing my mom or because I look young they don't think I am 20 years old, issues like this can possibly  make me required  for full guardianship. Because of this my rights and voice will be taken away I will give up my rights of choose  and since I am able I will be the one to sign off on this process. I don't want this to happen but that document is following me all over I want it remove but I don't know how this can change for me I am afraid that document will take my bright future away but my mom believe I am not in need of guardianship but I will now question whats on paper and how does it define me..
This has been on my mind for a while because I knew what idea would be