Sunday, October 30, 2016

My first college experience on my own

Well this was not plan but of course things happen..
One day this week my home health aid called out sick..It was unexpected. I had no idea so I was not prepared 
I had to go to class this day.. I got ready got dress and ate breakfast and waited for my ride 8:30 a.m yet my aid didn't arrive yet my heart started beating. I have an 8:33 a.m  sharp pick up with Access A Ride.. Of course I refuse to get a no show on my record and miss a day of classes for another type of unreliable service that suppose to provide me with care or assist me but unfortunately they failed to provide me with service in time so I continued my journey to school on my own for the first time. Thanks to my college for being disability- friendly.
Thanks to the nurse for assisting me in taking on and off my coat and thanks to the students for helping take off my book bag to get my books out for class.
Thank god for my six power wheels for being the powers to get me around campus with no problems. Thanks for being my legs with no excuses. I am never afraid to ask for help in a disability friendly environment.
Thanks for giving me the confidence to just say no matter what I am going to class.

Thanks for ensuring my mom to feel okay that I am going to class on my own since she personally know I struggle with fears of being alone but this was a big step for both me and my mom as she was afraid to let me be alone but I did it safe and sound Thank God 

Wednesday, April 6, 2016

I am not "Disabled"

Language impacts people with disabilities so much but as culture changes language does.. Does it depend on how we use it? Yes it does
As I grow up I didn't pay much attention to the language that is being use to relate to people with disabilities.
Now not only do I have a disability but I am an advocate for people with disabilities things become more clear in my work.
Every morning or evening on the news I hear such phrases heavy traffic and delays or a disabled vehicle is on the left side of the highway
Cars
Truck
Buses..etc because a "Disabled" vehicle so how can people who are human be Disabled too.
I am not broken
I use a wheelchair for mobility so how does that make me disabled? I am still able move
I am still in the learning process of using a communication deceive so people can hear me in large groups louder. But that does not mean I can not talk
People uses walkers, canes etc to be an assistant   to them. They are not disabled.
We are give aids to live an independent life and allow equal access to what makes us be labeled Disabled...
I am not disabled..
Define Disabled
#nolablels
   

Tuesday, March 1, 2016

Disability Awareness and Cerebral Palsy Month

Its March its disability awareness month and Cerebral Palsy Awareness Month as we celebrate this awareness I will like share how I feel the disability community should Unite and not be separated just based on disability. I feel the disability community should unite for many reasons I feel it will allow us to grow as a population to come together. My point of views as a person with a disability and a self advocate I believe that understanding one another difference, become aware and be educated about each other. I think this will avoid issues towards one other with disabilities no one should think that that because I am in a wheelchair and you use walker or you walk without any devices you should not think you are better than anyone. Cerebral Palsy awareness month wear green for myself and those who I love very much that live up to the challenge I am grateful that I am able to speak, hear, see or do anything for themselves but many of my little friends can do very little without assistance or without a voice and I am inspired to watch them grow as indivduals I blessed to be able to understand indivduals who have speech delays very well. I am also interested in learning a second language and sign language to increase my opportunities in the field of advocacy.. So what are you planing on doing to increase disability and CP awareness<3
Stay tune for upcoming blogs!

Tuesday, January 26, 2016

Its just a simply "Hi"

Over the years of being such an passionate advocate for myself and those who don't have a voice for themselves.
Being an active person despite my disability I enjoy being out and about shopping, going out to eat and being in my community put it has given me an eye opening that there is a need that perception changes towards people with disabilities.

While out in the community I face with a list of things that to me expresses a list of things.
1. Rolling around in my wheelchair they look at me like omg why is alone..when little do they know they are right behind me
2. The stares.. as if I am in pain and the pity sorry for..don't feel sorry for me I will tell you that I am totally happy.
3. When people talk to who ever I am with regarding  me before they speak to me first.
4. When people ask while can "she talk"
5. When people think whatever I am doing something I am struggling I someone must do everything for me no matter what it is  I get around my barriers an ace it successful.
6. People are afraid of people with disabilities..don't underestimate our disabilities..
7. When people talk to me like I am sitting on my brain.

Experiencing the winter with a disability

During the 2016 Blizzard in NYC
The City was shut down to provide safety and better serve the community in order to recover from the snow storm successfully and begin our week correctly but yet in my community they are yet to come and plow,businesses are yet to clear path ways on the side walk for people to walk especially for the elderly who uses walkers,cane and wheelchairs like myself. The curb sides are not even clean so that I can get into the streets to take my Access A Ride. The bus stops are full of snow so there is no where people in wheelchairs can get on the bus at least to go no where. I reported this issue to the 311 I am yet to get an email update from them but the only great opportunity is that I requested that I need assistance in shoveling the snow because I use a wheelchair and my dad is a senior and two volunteers came to help shovel my area..
Besides all of this its a shame on sanitation they never have people with disabilities especially wheelchair users and seniors we need to get out to complete daily activities especially work, school, doctors appointment, therapy etc  
Because of this I have been stuck home for 4 days straight...and I have so much to get done!!
Going to post pictures if I can soon